This September, CureSCG is inviting the public to take part in two events raising awareness for Limb-Girdle Muscular Dystrophy (LGMD), a rare, progressive genetic disease that causes muscle breakdown and can lead to loss of mobility, respiratory failure, and heart failure.
The awareness push is led by Sheena Urdaz, a physician assistant, CureSCG board member, and 
mother of two daughters, Donia (9) and Jayla (12), who both live with LGMD Type 2C. Their prognosis and long-term trajectory remain unknown, a reality Urdaz says drives the urgency behind educating the public now.
“LGMD is a disease most people have never heard of, and that has to change — not just for funding, but so people understand and include those living with it, and know how to keep them safe,” said Urdaz. “The more our community knows, the safer and more supported these kids are.”
Event Details
Virtual 5K Walk / Run / Roll — Sunday, September 27
Individuals, families, caregivers, advocates, healthcare professionals, and supporters everywhere are invited to walk, run, or roll in support of the LGMD community, from wherever they are. The event kicks off the lead-up to LGMD Awareness Day on September 30.
Wear Green Day — Wednesday, September 30
Wellington Elementary School will join classrooms and communities around the world in wearing green to show solidarity on LGMD Awareness Day.
